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Web platform for building and publishing health-data codebooks (data elements, value sets, terminology bindings); Nictiz hosts a Dutch instance.
Standard / specificationRegistry / catalogueWeb application
+2
- Licence
- GPL-3.0-only / LGPL-2.1-only
- Cost
- Free of charge
- Domains
- Clinical researchPatient registries & rare diseases
About
ART-DECOR can be used to publish structured metadata about datasets, including data elements and codebooks. In FAIR Metroline guidance it is used as an example source for reusable codebooks and structured metadata for clinical studies and patient registries.
Where it fits in the FAIR Metroline
Metroline steps
Analyse data semanticsApply common data elementsAssess availability of your metadataDesign eCRF (data collection)Register structural metadata
Use cases
Related tools
Castor EDC
Castor EDC
Cloud-based electronic data capture for clinical studies; multiple Dutch UMCs hold a licence.
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ERDRI.mdr
ERDRI.mdr
European Commission repository where rare disease registries publish their data element definitions, so others can look them up and reuse them.
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iCRF Generator
iCRF Generator
Desktop tool that generates eCRFs for Castor EDC, REDCap and other EDC systems from items in online codebooks such as ART-DECOR.
Clinical research
REDCap
REDCap
Web-based electronic data capture for eCRFs, surveys and study databases; non-profit institutions run their own instance at no licence cost.
Clinical research
More links
Keywords
codebook
FHIR